Eighteen years ago I was diagnosed with Acute Intermittent Porphyria after a phone call from my mother saying it could be the reason behind my mysterious illnesses.Mom had been diagnosed and when they tested me I had it too. Testing is difficult and some doctors aren't willing to diagnose unless the test is in the exceedingly high numbers which can be fatal if the doctor dismisses the thought totally. All it takes is one trigger too many. This blog is to reveal the complications with not only diagnosing but the ongoing struggle to live a normal life. I didn't realise it but I do have reactions to the sun which isn't typical for AIP but over the years I've noticed alot of things that I took for granted as being normal.