Porphyria

Here I am minding my own business, trying to stay out of trouble and I get a Google Alert about Porphyria. Those alerts used to be rare but now it seems I get as many as I used to get spam. Most are about prescriptions with warnings to not take it if you have Porphyria. I guess that's good and not a bad thing. Prescriptions are pretty dangerous for us and one of the most common triggers for Porphyria. Nooooo that vampire story is a bunch of bunk. I don't know where it started but they sure did us a diservice by associating us with something that has nothing to do with the illness. No we aren't mad most of the time. Frustrated yes because it's really hard to find a good doctor that not only knows his stuff but treats you like a human being with feelings and a serious illness. It is serious, but only if we are triggered by something and the attack is neglected. If you have Porphyria and want to talk or if you just want to know more about it I'd be glad to talk.